The saying “you never know what’s around the corner” often pops up when discussing uncertainty, and for one family in Montana, this became their harsh reality.
In February 2015, Anders Johnson faced a life-altering diagnosis that impacted his wife, Jennifer, and their five kids.
In a heartfelt Instagram reel, Jennifer, 48, explained how Anders bravely opted for a total gastrectomy nine years ago after discovering his high risk for hereditary diffuse gastric cancer, the same cancer that claimed his mother’s life.
This revelation came after Anders’ brother researched the rare cancer linked to a mutation in the CDH1 gene, which is often overlooked until it’s too late. With an estimated 80 percent risk of developing the disease, Anders had to make a critical decision.
@living_reframed
After consulting genetic counselors and testing, Anders learned he carried the CDH1 mutation, placing him at immediate risk. Faced with the choice to either undergo the drastic surgery or live with the uncertainty of cancer, he chose the surgery to ensure he could support his family.
Now at 53, Anders is thriving both mentally and physically, according to Jennifer. She shared in her post that the recovery took about three years, he has a disciplined workout routine, and surprisingly, he can still enjoy a drink.
Despite some public backlash accusing them of “playing God,” Jennifer has emerged as a strong advocate for genetic education. She has spoken at esteemed institutions like the Vanderbilt-Ingram Cancer Center and shared their story at events promoting stomach cancer research.
Today, the narrative surrounding Anders’ journey has changed positively. Many on social media have expressed gratitude for their openness, with some even indicating that Anders’ story helped them confront their own CDH1 diagnoses ahead of surgeries.
Jennifer noted that her video is connecting with others facing similar genetic challenges, making them feel seen and supported. “While there are still critics, the overall response has transformed for the better over the years,” she added.